WELCOME TO MEBO RESEARCH


MEBO Research, Inc., (MEBO) is a sufferer-founded patient advocacy international campaign registered in the State of Florida, United States, since April 21, 2010, under section 501(c)(3) of the Internal Revenue Code, classification of Public Charity. MEBO’s Mission to initiate research into rare genetic metabolic diseases, particularly those resulting in systemic, difficult to control body malodor and halitosis, including, but not limited to, Trimethylaminuria. In addition, studies will be initiated to analyze and categorize gut microbiota and to characterize the genes that the microbes are expressing in an effort to identify and understand microbial communities that could produce malodor symptoms, and to identify effective targeted course of treatment to control symptoms, and preferably cure the condition.

MEBO Research’s Mission is to initiate formal scientific research into rare genetic metabolic diseases, particularly those resulting in systemic, difficult to control body malodor and halitosis conditions, including but not limited to Trimethylaminuria. In addition, studies will be initiated to analyze and categorize gut microbiota and to characterize the genes that the microbes are expressing in an effort to identify and understand microbial communities that could produce malodor symptoms, and to identify effective targeted course of treatment to control symptoms, and preferably cure the condition of our international body odor community.

Additionally, MEBO focuses on community-wide efforts to bring together the world-wide odor community, through local support groups and peer-to-peer focused communications. Please see our main stategies below.


A BRIEF SUMMARY OF METABOLIC BODY ODOR:

Metabolic body malodor occurs when one or more of our internal cell enzyme(s), such as the Flaving containing mono-oxygenase3 (FMO3) metabolic enzyme, is deficient, rendering the the body unable to deodorize an odorous chemical. Consequently, a significant amount of the odorous unmetabolized volatile organic compound (VOC) builds up in the body and exits through the skin, nose, mouth, and other orifices.

Genetic trimethylaminuria is one such example of these rare metabolic malodor disorders. Difficult-to-control body and/or breath malodor can be triggered by hormonal changes, stress, and/or diet and intestinal function or structure. In many cases, physicians are likely to resort to an Olfactory Reference Syndrome diagnosis, a psychological diagnosis, and thus, the true underlying body odor diagnosis is not represented. As noted in a research paper, Individuals Reporting Idiopathic Malodor Production: Demographics and Incidence of Trimethylaminuria. [Wise PM, Eades J, Tjoa S, Fennessey PV, Preti G.], “We speculate that testing also might reveal cases of trimethylaminuria among those diagnosed with certain psychologic disorders, including olfactory reference syndrome.”

MEBO also recognizes that there are many unknown body odors which have yet to be classified and investigated, some falling under the term "Fecal Body Odor," or "FBO."
We hope to investigate the symptoms, causes, and gather sufferer feedback in reported cases and find ways to investigate this prominent population of the odor sufferer community.

MEBO BLOG: Visit our long-standing blog for an extensive archive of knowledge.

VIEW MORE IN-DEPTH INFORMATION ABOUT TRIMETHYLAMINURIA.


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MEBO’s main strategies are :

1: Self-help
2: Professional help
3: International TMAU Test Program*
4: Raising awareness

TESTING:
* The MEBO TMAU test program has FULLY resumed as of July, 2016.
MEBO's goal in creating a TMAU Urine test program, is to provide low-cost testing for all sufferers.

TO GET TESTED PLEASE BEGIN WITH OUR ONLINE REQUISTION FORM:
http://meboresearch.limeask.com/48699/lang-en



PROFESSIONAL NETWORK:
MEBO Research is proud to be an Organization Member of NORD, the National Organization of Rare Disorders (US), and an Organisation Member of EURORDIS, the European Organisation for Rare Diseases. Two MEBO Directors are Moderators of the Trimethylaminuria Community pages of EURORDIS and NORD’s partnership website, RareConnect.org. In addition, MEBO Research is listed as a patient organisation with Orphanet, and listed with Genetic Alliance


DONATIONS

MeBO Research USA

Registered Charity
Click the Donate button to make a
tax-deductable donation here:

or paypal direct to :
tax-deductible-donations@meboresearch.org

MeBO Research UK
Only for donations made from outside USA.
Not tax deductible.
Supports the UK Company only.

or paypal direct to:  
donations@meboresearch.org

 
 

 
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